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Little Hearts Matter

This record is classed under Long Term Conditions, Families, Support services, End of life.

Service Provider NameLittle Hearts Matter
ServiceLittle Hearts Matter offers support and information, and raises awareness of those affected when a child has only half a heart due to certain medical conditions.
Address311 Greenfield Crescent
CountyWest Midlands
Post CodeB15 3AU
Where do they provide service from?Address as above and a regional support team
Telephone0121 455 8982
Fax0121 455 8983
Area coveredSixteen network co-ordinators cover Northern Ireland, East and West Scotland, Yorkshire, the North West of England, West Midlands, Wales, Bristol and the South West, the South of England, London and the South East and East Anglia
Who is the service for?Anyone affected by single ventricle heart disease.
Referral routePlease call direct
Specific ethnic group?No
Summary of servicesLittle Hearts Matter offers support and information, and raises awareness of those affected when a child has only half a heart, due to conditions such as Hypoplastic Left Heart Syndrome (HLHS), Pulmonary Atresia, Tricuspid Atresia or Double Inlet Ventricle. They offer a friendly support line, medical information, antenatal information and support, regional network of support groups and national information and activity events. They also help with lifestyle queries and offer bereavement support.
When are the services run?See below
Time detailsOffice hours are Monday - Friday 9.00am - 4.30pm.
Outside of these hours parents share their own experiences and offer a listening ear Monday - Friday 4.30pm - 10.00pm.
Chargeable service?No
Total capacity of serviceNot applicable
Transport ProvidedNo
CQC RegisteredNot applicable
Sandwell Approved ListNot applicable
DisclaimerInclusion in this directory does not imply that Sandwell Council endorses the organisations and no responsibility is assumed for the information in their entries or their services. For terms and disclaimer see below. Directory last updated October 2019.

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